克罗恩让你感觉很低?这是如何清除主意

经过Megan McMorris 卫生师

当你有克罗恩,这就像有一个不需要的客人,他们总是在餐桌上。它可以让你觉得看起来没有分辨率 - 并且可以变成一个心灵游戏。“因为克罗恩这样的疾病是复发和拯救的,那些未知数可能会导致焦虑,”Mich E.Riehl,PSY.D.,Michigan大学GI诉讼行为健康计划的GI心理学家和临床计划主任。简单的策略,就像这些翻录脚本的精神伎俩一样,可以帮助你把克罗恩放在它的角落里,所以你可以专注于更重要的事情,就像你的生活一样。

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Stay on Top of Your Condition

最简单的方法让你的思维清晰的克罗恩病的is to make it someone else’s problem. See your doctor and team of specialists for regular appointments, and know they are keeping tabs of every change in your condition, so you don’t have to. Take the meds you’ve been prescribed (and let your team know if any of them aren’t working or have bad side effects). Then trust that you’ve done your part, and your docs are doing theirs, to keep your Crohn’s in line.

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Know Your Rights

如果你在会议的中间得到了那个时候的感觉怎么办?如果你是一个糟糕的浴室日,怎么需要?想知道你的克罗恩的头脑会与你的心态 - 甚至是你的工作质量。说起来,建议Riehl。“大多数患者惊讶地发现他们在FMLA和ADA下有权利,”她说。“通过在你的工作地点谈到合适的人,如果出现问题,它可以缓解压力。”

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让事情去

当你有一个像克罗恩这样的慢性病时,很容易落在过度思考的兔子洞里 - 做得更多的伤害而不是好处。“I’ve seen patients have burnout from their diet and medication regimes, because their whole life is surrounded by what to eat and when to take their meds,” says Niket Sonpal, M.D., a gastroenterologist and assistant medical professor at Touro College in New York City. “It’s important to give yourself permission to do this or eat that once in a while.”

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做你自己的教练

由于克罗恩可能导致疲劳,因此可能有时需要休息。而不是将它视为另一个失败,告诉自己,当你感觉更好时,你会节省一天的能量。“坦克中只有这么多,所以挑选并明智地选择你想要你的能量,”Riehl说。“如果你感觉很好,这是锻炼和与朋友和家人在一起的好时机;如果您必须根据疲劳进行修改,那也没关系。“

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Get Support

治疗师是你团队的重要组成部分,朋友和家庭意味着好。但是,与那里有人的交易故事更有意义。随着近年来克罗恩的意识提高,还有更多的选择比以往任何时候都更多连接其他时间. “There didn’t used to be as much advocacy, but now there are so many avenues for people to connect to others who have Crohn’s and colitis, and it’s important to do,” says Riehl.

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Channel Your Inner Boy Scout

像克罗恩这样的条件的最大压力座之一是“如果是怎么办?”方面。通过回答您自己的担忧,用“if /然后”声明来击败可能的场景的脑流失。“有一个计划,以便在公共场合有事故或症状,你手头有一个紧急套件,无论你可能会让你感到舒服,”Riehl说。“知道你的控制甚至可以控制它可以抚慰未知的焦虑。”

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打破你的沉默

克罗恩可以将扳手扔进浪漫的计划。但是,你如何拉伸这种非性感话题而不冒险进入TMI领土?诚实 - 你可能会惊讶于此,索博士说,他叙述了努力与在纸张问题之间挣扎的患者。“他遇到令人困难,因为他感到沉重和臃肿,”他说。“我鼓励他和他的伴侣交谈,这是非常了解的。他们能够解决它,只是因为他有勇气诚实。“

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明智地选择你的公司

It’s easy to feel like Crohn’s runs your life when you have to cancel plans one too many times. But think on the bright side: Having a chronic condition can help you ID who is on your shortlist. True pals help you through go with the flow and roll with the changes that Crohn’s brings, and don’t give you a guilt trip. “People who are worth your time, energy, and love will have compassion for the steps and changes you need to take,” says Riehl.

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Cut Yourself Some Slack

So, it turns out that you’re human. Like the rest of us. And while there are lots of ways you can keep the upper hand on Crohn’s, every once in a while it’s going to catch you by surprise. Don’t panic. Don’t stress. And don’t be embarrassed. Your symptoms may be more visible than some people's, but everyone has something they're dealing with. Trust us: Most people are too busy worrying about their own problems to even notice yours (for better or worse). If stuff happens, it happens. Allow yourself to get over it and move on. Everyone else already has.

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Megan McMorris